Author Archives: earlybirdies

thank goodness for special needs blogs

Parenting a severely disabled child can be an extremely isolating experience. But thanks to the Internet, it doesn’t always have to be this way. ¬†Without a doubt, reading the poignant words of families who are also on this journey has … Continue reading

Posted in Uncategorized | 9 Comments

Hello, Feeding Tube

I’ve chronicled our woes with feeding Andrew here, here and here. In a nutshell: despite intensive feeding therapy, Andrew is not physically and cognitively coordinated enough to eat by bottle and mouth in a comfortable, enjoyable, and consistent manner. And … Continue reading

Posted in Uncategorized | 13 Comments

Loving a Special Needs Family Member

Although our twins are nineteen months of age, we can’t help but sometimes feel as if Eleanor operates very much as an only child. While Eleanor is a healthy, energetic, and spunky toddler, Andrew is blind, developmentally a newborn, and … Continue reading

Posted in Uncategorized | 8 Comments

Adaptive Seating and Wheelchair Decisions

The time has come for us to really start thinking about and acting on getting Andrew adaptive seating for the home and a wheelchair. Aside from his beloved bouncy chair, Andrew has been using the Fisher Price Space Saver High … Continue reading

Posted in Uncategorized | Tagged , | 1 Comment

Neurology and GI updates

Gastroenterology: As an 18 month old, Andrew is about 28 inches long and 18.5 pounds. He’s an itty bitty guy and is far, far behind in the growth charts, although he is still proportional. In the past six months of … Continue reading

Posted in Uncategorized | 3 Comments

Laughter and Swimming

As Eleanor laughs her little heart out day and night, we’ve often wondered what Andrew’s laughters would sound like. Andrew smiles and coos like it’s nobody’s business to convey his ever growing happiness, but we’ve never heard him laugh. Until … Continue reading

Posted in Uncategorized | 9 Comments

Feeding Woes

Because of his complicated GI history, Andrew has always been a bit underweight. When Andrew came home from the NICU back in October, he was five months old and weighed about 8 pounds. Two months later as a seven month … Continue reading

Posted in Uncategorized | 5 Comments

A march, a birthday, a hospitalization

On April 30th, the kiddies and I walked for our local chapter of the March of Dimes. With the generous support of our friends (even ones we’ve never met!) and family, over $3300 was raised for our walk. For those … Continue reading

Posted in Uncategorized | Tagged , | 5 Comments

Upswings and Big Neurological Downswings

Things have been both on the upswing and downswing with Andrew these days. On the upswing, he is still sleeping at night, has started taking naps during the day, loves to snuggle, and coos and smiles to music and fun … Continue reading

Posted in Uncategorized | 6 Comments

March of Dimes

The mission of the March of Dimes is “to improve the health of babies by preventing birth defects, premature birth, and infant mortality.” On Saturday, April 30, I will be walking alongside other NICU families and the very doctors and … Continue reading

Posted in Uncategorized | Leave a comment