Author Archives: earlybirdies

Video: How I Bolus REAL FOOD Through a Feeding Tube

Although I’ve largely abandoned updating this blog in recent years, I still check in on it periodically and am amazed that people still visit. Seeking information, readers from all around the world find themselves at our humble little blog. How do … Continue reading

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Long time, no see!

Hello, dear readers! Over a year and a half has passed since our last update. There are three primary reasons for this: Reason 1) My work schedule has become more demanding. Reason 2) I had another baby. Mikey is now … Continue reading

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It takes a village

Ironically, a part-time job of mine in college was working for an agency that provided respite services for families caring for a disabled family member.  I helped care for people ranging from ages sixteen up to their sixties; none of … Continue reading

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Rethinking Therapy and School

This May, a three-year-old Andrew will age out of the Early Intervention (EI) program which has provided all of his therapies to date. The natural next step for most families with a child of significant physical disabilities is to then … Continue reading

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On not seeing eye-to-eye with a doctor

At 22 months of age, Andrew weighed approximately nineteen pounds when his g-tube was surgically placed. A few weeks after g-tube placement he was down to eighteen pounds and looking and acting like death. At 23 months, despite reservations from … Continue reading

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Still blending away

This is more of an informational post for anyone who is curious about Andrew’s daily life on the blenderized diet. Here is a sample of Andrew’s daily schedule, which starts whenever he wakes up: 8 am: Eat 5 ounces of … Continue reading

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Plenty of sibling love to go around

Andrew has probably been working a solid two years now on trying to get his fist into his mouth. The cerebral palsy makes his arms very tight so this is a very difficult task for him to do without a … Continue reading

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Our Blenderized Diet Experience So Far

In our last post, we discussed the surgery options presented to us by doctors to address Andrew’s severe vomiting and reflux. Wary of more surgeries that may or may not even work, I did some internet sleuthing and came upon … Continue reading

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2 Options to Try to Keep Andrew’s Food Down

Thank you so much for the advice and general support and love from our last post about Andrew’s feeding woes. We really appreciate it :). Andrew is out of his 4-6 oz a day listlessness and has now worked up … Continue reading

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G-tube Woes, More Seizures, First Dental Visit

Our euphoria with the G-tube at home lasted approximately a day and a half after our hospital discharge. The good news: it’s still so easy feeding Andrew! Just put the formula through the tube and then done! The bad news: … Continue reading

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