Parenting a severely disabled child can be an extremely isolating experience. But thanks to the Internet, it doesn’t always have to be this way. Without a doubt, reading the poignant words of families who are also on this journey has been essential in maintaining a healthy state of mind about our own extraordinary circumstances. Whereas our blog is mostly medical updates and photos for friends and family, these get into the heart of special needs parenting and the world is a better place as a result. Below are a list of some of the wonderful blogs that I am so thankful are in existence!
Over at the Bloom Special Needs Blog, Louise chronicles the trials and triumphs of dear Ben, regularly tackles difficult issues that come up in the realm of special needs parenting, and serves as a pulse for interesting special needs books and media stories. A couple posts that particularly resonated with me:
When there isn’t a happy ending
A fate worse than death?
Friends in need, friends indeed
Stacie, over at Mama Lewis and the Amazing Adventures of the Half-Brained Baby, blogs about her cutie pie daughter, May.
A Hero or Just a Parent? from the New York Times Motherlode blog
If she can do this, I can from The Guardian
What’s God’s plan for May?
Jennifer, over at YES or NO: Raising a boy with multiple severe disabilities, has recently published a memoir about her experiences raising Owen who passed away last year at the age of 12. In addition to finding her writings on accepting your special needs child especially thought-provoking, I love that she writes about her other son, Angus, in relation to Owen as well.
On fake work, cheerful pretend, and hope as snake oil
It’s enough to break your heart wide open
I’ve included Kelly’s blog, Unlock the Secret Voice, because I’ve found no other blog that addresses the content that she does. Kelly recently made the extraordinarily difficult decision to place her severely disabled teenage son in a residential home. Her writings about the experience are brutally honest and filled with so much love for her child that it will make your heart hurt.